Responsible Genomic Data Sharing

Book excerpt: Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. - Addresses privacy preserving technologies and how they can be applied to enable responsible genomic data sharing - Employs illustrative case studies and analyzes emerging genomic data sharing efforts, common challenges and lessons learned - Features chapter contributions from international experts in responsible approaches to genomic data sharing