PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR TUBEROUS SCLEROSIS COMPLEX

Book excerpt: In recent years, the understanding of tuberous sclerosis complex (TSC) has evolved significantly, encompassing not only the medical and biological dimensions of this genetic disorder but also the psychological implications it carries for those affected. TSC is a rare genetic condition characterized by the growth of benign tumors in various organs, often leading to a complex interplay of physical and emotional challenges. As a multidisciplinary approach becomes increasingly essential in managing such conditions, the integration of psychological support has emerged as a vital component in the overall care of individuals with TSC. This book, "Psychological Support by Cognitive Behavioral Therapy for Tuberous Sclerosis Complex," seeks to bridge the gap between medical treatment and psychological well-being. By employing cognitive behavioral therapy (CBT) as a therapeutic framework, this work aims to empower individuals with TSC, their families, and healthcare professionals by providing practical tools and insights to navigate the emotional landscape associated with this condition. In the following chapters, I will explore a range of topics, including the biological and genetic underpinnings of TSC, the psychological ramifications of living with a chronic condition, and the application of CBT techniques tailored specifically for individuals affected by TSC. Each chapter is designed to not only inform but also offer actionable strategies for managing the emotional burdens often accompanying this disorder. It is my hope that this book serves as a valuable resource for clinicians, therapists, and individuals living with TSC. By enhancing the understanding of the psychological aspects of TSC and providing effective therapeutic tools, we can foster resilience, improve quality of life, and promote a more holistic approach to care. I extend my gratitude to all those who contributed to this project, especially the individuals and families affected by TSC who shared their experiences and insights. Your courage and resilience inspire the work within these pages. Together, let us embark on this journey toward understanding and support.