是什么让罕见病儿童非同寻常？ 聆听罕见病儿童埃夫伦自我成长的心路历程，探索问题答案！ 本书由母子联手创作，基�

"This book is about the struggle to save the lives of children who, because of a roll of the genetic dice, are born with any one of more than several thousand r

(Mandarin) What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing a conversation with Evren about what he has l

What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing an illustrated conversation with Evren Ayik about what h

LOS ANGELES TIMES AND PUBLISHERS WEEKLY BESTSELLER • The powerful memoir of a young doctor and former college athlete diagnosed with a rare disease who spearh