Agnes's Jacket

Book excerpt: In a Victorian-era German asylum, seamstress Agnes Richter painstakingly stitched a mysterious autobiographical text into every inch of the jacket she created from her institutional uniform. Despite every attempt to silence them, hundreds of other psychiatric patients have managed to get their stories out, or to publish them on their own. Today, in a vibrant network of peer-advocacy groups all over the world, those with firsthand experience of emotional distress are working together to unravel the mysteries of madness and to help one another recover. Agnes’s Jacket tells their story, focusing especially on the Hearing Voices Network (HVN), an international collaboration of professionals, people with lived experience, and their families and friends who have been working to develop an alternative approach to coping with voices, visions, and other extreme states that is empowering and useful and does not start from the assumption that such people have a chronic illness. A vast gulf exists between the way medicine explains psychiatric conditions and the experiences of those who suffer. Hornstein’s work helps us to bridge that gulf, guiding us through the inner lives of those diagnosed with schizophrenia, bipolar illness, depression, and paranoia, and emerging with nothing less than a new model for understanding one another and ourselves.